Dormans Fundraiser for Jodie Hardwick
At town favourite the Dormans enjoy an event in aid of Jodie Hardwick to raise much needed funds for ground breaking treatment. Niall Southall will be the one and only “ELVIS” on Friday 27th January 2017 . Tickets will be £3 and will include a tombola, raffle and bingo. There will be plenty music and fun.
Tickets can be purchased from the Dormans or see the poster for more information.
If you would like to make a donation to this fabulous and life changing cause then please visit the Go Fund me page set up here
Jodie Hardwick was a lively little girl – the only girl in nursery who could ride a bike without stabilisers and always on the go. But when, aged seven, she contracted measles, things started to go wrong. Mum Michelle remembers: “Her sister Kimberley had the measles at the same time and she was fine afterwards but Jodie was a bit doddery and wobbly, falling over a lot like she had two left feet.”
She was diagnosed with rare genetic muscle-wasting disorder Roussy Levy Syndrome. By the age of 11, she was in a wheelchair and has remained so ever since, although her diagnosis was changed to Friedreich’s Ataxia when she turned 16.
Life hasn’t been easy, yet Jodie and her family have coped – but things have worsened in the past couple of years. Her eyesight, hearing and speech have deteriorated badly. There was a slow deterioration and then all of a sudden, it just accelerated to a devastating point.
Jodie, of The Larches, Teesville, has a winning smile but admits her situation can leave her feeling “pretty miserable.” “I didn’t expect any of this,” says Jodie in speech which is, understandably, slow and laboured. “The kids want to do stuff and I can’t.”
Michelle says specialists in England have been unable to offer any solutions or treatment – “they just say ‘if anything comes up, we’ll bear her in mind’ but they’ve been saying that since she was 12.”
But after research by Jodie’s sister Julie Allport, the family has found a hospital in China – the Shixin Hospital in Dongguan – claiming to offer stem cell treatment which, while not offering a cure, could slow the disease’s progress and even bring back some of Jodie’s sight, hearing and muscle function.
With £15,000 to raise by December, they know it’s an uphill task – but it’s one they’re prepared to take on. They’ve set up a JustGiving page and raised nearly £1,000 at the weekend collecting at Morrisons in Berwick Hills.
An emotional Michelle said: “The hospital in China has done this treatment on people with similar conditions who’ve regained some sight and speech, as well as having slightly better muscle control.
“We just hope she gets some sight back more than anything so she can see her son again.
“It’s not a cure but if anything can improve her quality of life, we have to try for it.
“If it works, absolutely brilliant. We’re willing to try anything before it’s too late.”